Waiting for a child’s autism evaluation can be an anxious and uncertain time for parents…you know something is going on for your child, but aren’t quite sure what it may be.
Some parents find this “Wait Time Blues” period to be the most frustrating of all in their journey as autism parents. You’re stuck in a nebulous world of waitlists, new providers, endless paperwork, and insurance hassles. And to top it off, your child is probably struggling…otherwise, you wouldn’t have asked for an evaluation.
That’s why I created this supportive checklist of productive steps you can take during this waiting period.
By staying proactive and engaged, you can make the most of this challenging time while setting yourself and your child up for success once you get on the schedule for an evaluation.
Let's dive in!
Reach Out to Support Networks
Connect with other parents who have gone through the evaluation process. Seek out online forums, support groups, or local community organizations. Sharing experiences and concerns can provide comfort and valuable insights. Those “been there, done that” parents are some of the best resources you’ll find on your autism parenting journey!
Reach out to friends, family, and trusted individuals who can provide emotional support. Having a network of people who understand and empathize with your situation will help alleviate anxiety and provide a sense of comfort…plus, maybe some of them could help out with child care so you can get a break (or call the insurance company for the 5th time this week in peace).
Gather Information
Educate yourself about autism. Read books, browse reputable websites, and access resources from recognized autism organizations. Building your knowledge will help you better understand and support your child.
It will also give you the information you need to have an informed conversation with the providers you encounter about what the best treatment protocols and options are for your child.
Document Observations
Keep a journal to record your child's behaviors, strengths, and challenges. Note any patterns or specific incidents that could be relevant during the evaluation process. This information will assist professionals in making an accurate assessment.
You’re going to have a lot of paperwork to complete! Putting all your questions, comments, and concerns in one notebook or Google file will really help you organize your thoughts.
Prepare Questions
Write down a list of questions to ask during the feedback session after the evaluation. This will ensure you gather all the necessary information and clarify any concerns you may have.
You may not have a lot of time with the evaluator, so be sure you are ready with an organized, thought-out list of questions before the appointment.
Research Local Resources
Identify local resources such as therapists, support groups, early intervention programs, and educational services specifically tailored for children with autism. Knowing what is available in your community will help you plan for the future.
Also, if you or your pediatrician think your child needs early intervention services, don’t wait until they have an “official” diagnosis to get them started! There's no reason you can't get your child enrolled in occupational, speech, physical, or play therapy before they have their autism diagnosis. Having assessments and treatment notes from other clinicians and therapists may help ensure your child gets an accurate diagnosis during their autism evaluation.
Focus on Self-Care
For the love of everything good in the world, take care of yourself during this waiting period! Focus on activities that bring you joy and help reduce stress…that will help alleviate the “survival mode lifestyle” that so many parents fall into during this time.
Practice self-care techniques like exercise, meditation, or spending time with loved ones. Remember, your well-being is essential too. Autism parenting is a marathon, not a sprint, and you need to be prepared to take care of yourself in a way that lets you stay in the game for the long haul.
If you need support developing a personalized self-care routine that takes as few as 5- minutes a day, download your free self-care checklist by clicking here.
This article lists my top-7 tips for taking care of yourself after an autism evaluation…you may find some of them helpful during your wait.
Keep a Positive Outlook
While waiting for results can be challenging, try to maintain a positive mindset. Focus on your child's strengths and what is going well for them (and you)! Celebrate their progress, no matter how small it is. Surround yourself with positive stories and experiences shared by other autism families.
I know it isn’t all sunshine and rainbows, but it isn’t all doom and gloom either! So much of your experience of parenting your autistic child is colored by your attitude and perception of what is going on around you. Whether it’s establishing a gratitude practice or practicing meditation, do your best to cultivate a sense of positivity and mindfulness about your life and your child’s diagnosis.
Conclusion
While waiting for your child’s autism evaluation can be a time filled with uncertainty, taking productive steps can help alleviate anxiety and empower you as a parent.
By reaching out for support, gathering information, documenting observations, and practicing self-care, you are actively participating in your child's journey. Remember, you are not alone, and there are resources and a community ready to support you every step of the way. Stay positive, stay engaged, and be proud of your commitment to your child's well-being.
And if you need support on your journey, contact me here for more information about my one-on-one and group coaching packages.
They’re both created to help you navigate this time with clarity and peace so you can become the best version of yourself as you remain the parent your child needs you to be.
Meet your self-care coach!
